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Tuesday I had my Neurologist appointment,
He was a sweet guy, a little younger than me, but competent.
He asked a lot of relevent questions about the "attacks" I get sometimes when I get to stand.
He made some tests on me, and in the end he came to the same conclution I made months ago.........Somehow, if I sit for to long, some nerves or muscles need blood so I get the attacts , if I sit to long.
His treatment was to sit the oven timer for 30 min, for a while until I get into a habit of doing the paused myself-
I am pleased with the verdict . at least my brain is not damaged by that...

Today I went to the hospital to get my hemochromatosis sorted out...
Just to be told, as I have only one sick gene, they cannot treat it as that..
Turned out that my liver has some "defects", but they do not know what causes it....
So the bottom line.....I have to much iron in my blood, my pain level is getting higher and higher - and not a thing they can do, but tell me not to eat vitamins in pill form...


( 4 comments — Leave a comment )
Nov. 21st, 2015 12:47 am (UTC)
Oh no! Sweetie, I was so hoping you get solid answers and a good treatment plan today! I'm so sorry it didn't go as you'd hoped. *hugs*

What are the next steps now? Do you have to see more doctors and have more tests?

Out of curiosity, why no vitamins in pill form? Must you take them in other forms?
Nov. 22nd, 2015 06:04 pm (UTC)
Thank you Honey♥
Me too, but it was just" not that so learn to live with the new pain". Not much new in that, but more and more pain adding up.....UGGG.

New bloodtests in a few months, to check on the iron levels..

If I can find vitamins without iron I can have them, but the only thing I can find is some herbthing, costing a lot and with no effect...but I have to keep looking.
Nov. 21st, 2015 08:54 am (UTC)
Oh, honey...I'm sorry. Good and bad news in so, so many ways. UGH. That's just...

*hugs you hard*
Nov. 22nd, 2015 06:00 pm (UTC)
Thank you sweetheart♥
It is, and I am still a bit confused about it all...
But well.....
♥Hugs you back♥
( 4 comments — Leave a comment )

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