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NEWS AND UPDATES

This is just a short update on what have been going on the past week or so. I post about Sarah’s weekend this weekend.

Remember my fall last week. Last Thursday at rehab I was standing on a balance turtle shield. I was alone in the gym and doing the exercises I had been given. Suddenly without any warning I fell backwards from the shield and landed on my back and head.
I didn’t think I could get in more pain than I am but turned out I could. I had to cancel rehab Friday and Monday, but it is better now.

I had a talk with my physiotherapist there, and it turns out they have never had a patient like me before, they have no idea how to work with cancer patients that never gets better…..that is interesting I think.

I have my medication regulated again, this time the Lyrica with 50mg so I get 225mg twice a day, for the nerve damage. Plus all the other drugs I get. Luckily I get some refund from the health insurance.

Wednesday Mum and I went to a funeral. It was a young man, 24 years old, that had killed himself. Mum had his sister in day care 18 years ago and I was babysitter for all 3 of them. It was so sad, I feel so bad for his parents, because apparently no one know why he did it…..

My Grandmother and Aunt that have lived here for 15 years and for whom my parents and I have done everything for, have decided to move. My other aunt have arranged for them to get a house in a village where she lives, have terminated the apartment they live in now, gotten my sister, uncle and the rest of the family involved. The only people that didn’t knew anything……Mum and me…we heard it from Sarah!!
I know it is their free choice where they want to live, but Mum and I feel a little betrayed. For the last years we have been over more times a week, to help out with pc, phones, bills every itsy bitsy annoying problem, being the ones helping and taking care of grandmother….and then they don’t even feel the need to tell us they are moving away…..

Yesterday I was at a meeting with my social worker, my physiotherapist there and a woman from the media group - and Mum.
I am going to work in the group four days a week two hours a day between 11 and 1 pm to start. I have Wednesday off. Their plan is to get me to work 37 hours a week within three months.
Well that is not gonna happen but I have to “prove” that I´m sick and never gets better:(

I have my 6 month check up and mammogram at the hospital next Tuesday. To be honest, I am a little nervous….

♥love you♥

Comments

( 41 comments — Leave a comment )
(Deleted comment)
pippii
Oct. 22nd, 2010 07:23 pm (UTC)
I´ll do my best honey, no more turtle shield for me.
Somehow I think it is what our family had come too, Mum and I being slaves, but not informed about anything...

Thank you sweetheart♥
Love you♥
(Deleted comment)
woman_of_
Oct. 22nd, 2010 06:57 pm (UTC)
Sounds like it has been a really tough week for you and your Mom. You both really don't need this on top of everything else. Thinking about you darling.

*hugs*
pippii
Oct. 22nd, 2010 07:23 pm (UTC)
Thank you so much honey, sometimes a week can be just to much right??
♥hugs♥
adorkable74
Oct. 22nd, 2010 07:04 pm (UTC)
I'm sorry you're going through tough times, I'm keeping you in my thoughts and prayers.
*hugs and love*
pippii
Oct. 22nd, 2010 07:24 pm (UTC)
Thank you very much honey, that means a lot to me.
♥hugs and love you♥
aelia1980
Oct. 22nd, 2010 07:10 pm (UTC)
I think I´ve never mentioned it before but I want to say it now, I think it´s unbelieveable and very extraordinary how open you speak about your illness in a community where you don´t really know (personally) the people who are reading your posts. I really admire you for your frankness and the way you handle it.

Anyways, I understand that you and your mom are hurt about your grandmom and aunt moving away and not telling you about it. They are family and I think thinks like that - moving is something you don´t do everything - should be told your closest relatives.

When are you starting your new "job"? Even if it is just to prove that you are too sick to work I wish you good luck. Maybe you can even enjoy it, socializing with new people again and I hope you will be warmly welcomed and treated friendly.

I bet you are nervous about your examination on Tuesday, who wouldn´t be. I hope the results are the way you wish them to be, I´ll be keeping my finger´s crossed for you.

Sending you loads of love and hugs!
pippii
Oct. 22nd, 2010 07:32 pm (UTC)
Thank you honey.
Well I started using this lj as a diary when I got sick, as a way to get down all my thoughts and stuff....
So it is just natural to write this way, and my friends here are more family than some of my "real" family now.

My Mum thinks it has to do with my Dad dying, but I don´t know...anyway my family is weird as you know...

I start next week on Wednesday as I have appointments Monday and Tuesda....
They are nice out there and understand I will not be able to work all those hours, so it is not the worst place to prove I can´t do it..

Thank you sweetheart, I just wish for no cancer or odd cells, that is not to much to ask for is it??

♥hugs and love you♥
(Deleted comment)
pippii
Oct. 22nd, 2010 07:26 pm (UTC)
It is so sad.....his poor parents are devastated.

Thank you I think so too, I´m just a bit nervous as always;)
♥huggles♥
lisaj67
Oct. 22nd, 2010 07:54 pm (UTC)
Awww Hard times honey,Good luck for next TuesdayI'm hugging you so tight xxx
pippii
Oct. 23rd, 2010 08:24 am (UTC)
Thank you so much for your support Lisa♥
Hugs
bflyw
Oct. 22nd, 2010 08:17 pm (UTC)
I have been a bad LJfriend lately and haven't had the energy to check my flist much, so I hadn't caught that you had a fall. Sorry to hear that!

Interresting what you say about them not being used to seeing a cancer patient that doesn't get better. It makes it so much harder for you, because you have to prove that you don't fit the mold (just as I have to prove that I don't fit the migraine mold). It's really tireing!

Lots of hugs!
pippii
Oct. 23rd, 2010 08:26 am (UTC)
♥klemmer♥
Du skal ikke undskylde, jeg ved hvordan det er...

Ja, det er opslidende altid as skulle "bevise" at man er syk og ikke blir bedre, vi har det hårdt nok i forvejen..

honeyjojames
Oct. 22nd, 2010 08:33 pm (UTC)
Sorry to hear it's been such a horrible week for you, sweetheart. I hope things look up for you soon. Sending good thoughts your way! *hugs tightly*
pippii
Oct. 23rd, 2010 08:29 am (UTC)
Thank you sweetheart.
I has been a hard weel, I´m glad it´s over...
♥hugs and kisses♥
cmc1964
Oct. 22nd, 2010 08:34 pm (UTC)
Oh god hon, I`m so worried now! How are you, hope your back and head is better now and you are not in much pain! "balance shield are very evil" - speak from personal experience.
Because of your grandma and aunt, I can well imagine that you both feel betrayed. I`m so sorry!
I wish you good luck in your job, and hope that you feel comfortable up there and have fun!
Tuesday will be a good day for you - firmly believe - everything is fine - no bad cells, no cancer!!
I `m thinking of you, and keep my fingers crossed. *hugs ya very tight* LG Julia
pippii
Oct. 23rd, 2010 08:35 am (UTC)
Thanks honey, I´m better now, but it took a few days to get there.
"balance shield are very evil" they so are!!
I feel angry for my Mum, because she had done everything for them and with just loosing my Dad, she doesn´t decerve to be treated like this....
Thank you I´m sure it will be fine, I´m just always a bit nervous, you know.
♥love you honey♥
pollyspn
Oct. 22nd, 2010 09:23 pm (UTC)
Ounn baby, I'm so sorry.. Take care yourself, please..

I'm praying for you...

Brazilian hugs..
pippii
Oct. 23rd, 2010 08:30 am (UTC)
Thanks for being here honey♥
Hugs and kisses
burned_phoenix
Oct. 22nd, 2010 09:26 pm (UTC)
I'm sorry to hear about your grandparents, that really sounds mean, to tell everyone but you :s

and I didn't know you fell! guess I missed that post/s? :( I'm so sorry! and that they don't know how to work with you sounds weird somehow.

I hope everything works out with the job thing and they realise soon that they can't overstrain you!

love you, darling *huggles*
pippii
Oct. 23rd, 2010 08:32 am (UTC)
Yeah, I got angry and felt like they betrayed my Mum, she has been doing everything for them...

It is hard when you have to "prove" all the time that you´re sick.....

♥love you too darling♥
burned_phoenix
Oct. 24th, 2010 04:32 pm (UTC)
I don't understand people like that.

I bet it is, I'm so sorry, darling! *hugs*
elebridith
Oct. 22nd, 2010 09:42 pm (UTC)
I'm so sorry you had such a shitty week! *hugs* Good thoughts your way, hun!
pippii
Oct. 23rd, 2010 08:28 am (UTC)
I´m glad it is over now to be honest honey.
Thank you♥♥
HUGS
fabilimah
Oct. 22nd, 2010 10:42 pm (UTC)
♥ hugs ♥

I'm so sorry Pips. Take care of yourself
pippii
Oct. 23rd, 2010 08:27 am (UTC)
♥hugs back♥
I will my Pada-girl, I promise♥
billysgirl5
Oct. 23rd, 2010 01:43 am (UTC)
*hugs and squishes*
pippii
Oct. 23rd, 2010 08:27 am (UTC)
♥Thank you sweetheart♥
Hugs
babydracky
Oct. 23rd, 2010 10:24 am (UTC)
It is good to hear that you're a little better, my Kastanje Honey. It is really is sad to know that for now the doctors can't help you with the pain. -_-
I really hope they'll find soon enough something that'll work.
And, then, I feel really sad about what you said about your aunt and grandmother... They really should have told you. It isn't fair. And I'd feel betrayed myself.
*HUGS YOU TIGHT*
Hope everything will be "ok" at work and they'll understand that you need to rest a little more.
LOVE YOU
pippii
Oct. 24th, 2010 07:54 am (UTC)
♥thank you Sweetie♥
The new dose of medication is kicking in, so that helps a lot..
We feel betrayed and don´t want to get involved in the moving, they can ask for help if they want some....
♥hugs and kisses♥
Me too...
♥Love you sweetie♥
buzziecat
Oct. 23rd, 2010 09:47 pm (UTC)
I'm so sorry that you are hurting, pippii. Believe me, I understand.
I hope the change in meds brings you some relief and not more bad dreams.
Have you tried an ice pack for the pain? It may help and sometimes more than heat. You can lie on a gel coldpack or on your abdomen and have your mom put the pack on the area of your back that hurts - for about 15 minutes at a time.
It might be worth a try.

Your grandmother and aunt - no wonder you and your mom feel hurt. It's amazing how some people can be thoughtless (inconsiderate) as well as doing things without thought (as in DUH, didn't think.) I don't know what you and your mom plan to do but sometimes it is worthwhile to say something to the people involved. "We felt very hurt that you did not tell us you were moving, that we were left out." This makes the statement one that is about you and your mom and how you both feel rather than saying something blaming them. They will get the message though and you and your mom may feel better about the situation.

After all, what's the worst that can happen if you say something? Your grandmother and aunt will move away without telling you? :):):)

xoxoxo and big hugs
buzzie
pippii
Oct. 24th, 2010 07:52 am (UTC)
♥hugs♥ I know you do buzzie..
I´ve tried heat packs and ice packs and medical cream, but the pain is the nerve endings and the bones, so it doesn´t help. But the new dose of medicin is starting to kick in now.

We both told my aunt and Grandmother that we were surprised of them not telling and got nothing back...then we told then to tell if they needed any help during cleaning packing or moving, and now stay out of their way...

But as Sarah said, it is a good thing too, now we don´t have to spend Christmas and all holidays at my Grandmother, but can have guests or go out if we want to;)

♥hugs and kisses♥
Pippii
buzziecat
Oct. 24th, 2010 01:11 pm (UTC)
But as Sarah said, it is a good thing too, now we don´t have to spend Christmas and all holidays at my Grandmother, but can have guests or go out if we want to;)But as Sarah said, it is a good thing too, now we don´t have to spend Christmas and all holidays at my Grandmother, but can have guests or go out if we want to;)

Sarah is very smart and wise and you and your mom can really enjoy yourselves! Turned out very well, it seems. :)&hearts
i_o_r_h_a_e_l
Oct. 24th, 2010 05:24 am (UTC)
I hope your check up will turn up okay.

*hugs*
pippii
Oct. 24th, 2010 07:48 am (UTC)
Thank you honey♥
Hugs
angels_cordy
Oct. 24th, 2010 03:16 pm (UTC)
Ohhh honey are you ok!!??
I am worried about you!!
Those are no easy times for you and I wish I could help you somehow but just know that I think of you every day and I am with you with my thoughts and my heart!!!
Ohhh dear why does your family do that!!!??? Sometimes I really do not understand how people that close can be sooo cruel but it happens over and over again even in my family.....sad sad sad!!

I will have my fingers crossed for you on Tuesday and I will send all my good vibes and prayers and hopes to you!! I am sure everything will be fine, it just has to be.

LOVE YOU SWEETHEART
pippii
Oct. 24th, 2010 04:11 pm (UTC)
Don´t worry Angel, I´m good now. Took about a week but I´m fine.
I know you are here and I love you for it, I am so grateful I have you♥♥
Talked to Mum about it today, and she really feel betrayed about it, the thing that gets her most is that her greandkids knew it a week before we did....

Thank you sweetehart♥ I´m sure it will be fine, it has to be..

♥Love you My Angel♥
paloma1182
Oct. 24th, 2010 05:47 pm (UTC)
i just wanted to pop in and say that i love you- i miss you..

you are my world!
xoxoxo
pippii
Oct. 25th, 2010 08:17 am (UTC)
Ohhhh Baby-Doll I love and miss you too♥
Thank youuuuuuu♥♥♥
I´ve posted my weekend with Sarah, I think you would like it;)
♥Love you♥
paloma1182
Oct. 25th, 2010 05:15 pm (UTC)
im gonna go look at it right now! :) im glad that sarah has been able to come see you lately!

*smile!* i love you!!!!!!!!!
( 41 comments — Leave a comment )

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